Vlastíkovi diagnostikovali ALS v roce 2022. Jedná se o nemoc, která oslabuje svalstvo celého těla, nikoliv však mozek. Dalo by se říct, že pacienta uvězní ve vlastním těle. Ve Vlastíkově případě se nemoc začala projevovat slábnutím pravé ruky, to ho vedlo k nástupu na dlouhodobou nemocenskou a následně k ukončení služebního poměru. Postupem času začala nemoc postihovat levou ruku a přenesla se do obou dolních končetin a prstů. To už mu bohužel brání v soběstačném životě. Slábnutí rukou zapříčinilo, že není schopen k chůzi bezpečně užívat berle. Běžné činnosti, jako je pití nebo schopnost se samostatně najíst, činí Vlastíkovi problémy. Bohužel, u tak závažné nemoci je často ze značné části narušeno i psychické zdraví pacientů. ALS má obvykle prognózu 2–5 let.
Vlasťa není člověkem, který by druhé prosil o pomoc a stěžoval si na svůj stav. Je spíše zdrženlivým a nenápadným chlapíkem, který bere život takový, jaký je.
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Vlastík was diagnosed with ALS in 2022. This disease progressively weakens the muscles throughout the body, though it spares the brain. One could say it imprisons the patient within their own body. In Vlastík’s case, the disease first manifested as weakness in his right hand, leading to long-term sick leave and, ultimately, the termination of his service. Over time, the disease began to affect his left hand as well, spreading to both legs and fingers. This now prevents him from living independently. The weakening of his hands has made it unsafe for him to walk with crutches, and everyday tasks such as drinking or feeding himself have become a challenge. Unfortunately, with a disease as severe as ALS, the mental health of patients often suffers greatly. ALS typically carries a prognosis of 2–5 years.
Vlastík is not the type of person to ask others for help or complain about his condition. He is a reserved and unassuming man who takes life as it comes.
What Will the Funds Be Used For?
The funds raised will help ease the burdens that Vlastík’s illness brings—and unfortunately, these will continue to grow. They will be used to cover the costs of rehabilitation, assistive devices, and transportation aids as recommended by his doctors, as well as hygiene products and home modifications for accessibility. One significant expense for the family will undoubtedly be the purchase of a specially adapted vehicle, which will become an absolute necessity. All these measures and further steps are being coordinated with the ALSA organization. ALSA provides Vlastík with guidance and advice on how to make his battle with the disease as manageable as possible. Due to the severity and wide-ranging impact of ALS, it is almost impossible to specify every area the funds might be used for.
If the fundraising goal is not met, the money will be used to cover the most critical needs, based on the amount collected.
Conversely, if more funds are raised than anticipated, they will be used to cover household expenses, fuel costs, or the purchase of additional equipment tailored to Vlastík’s current health condition.
