Podpořili jste tátu s ALS a jeho pečující mamku

This collection was created for our dad, who is battling ALS, a progressive disease with no cure that gradually weakens all of his muscles. Dad has worked hard all his life – he was a crane operator and cared for our family and everything around it. Today, his greatest support is our mom, who cares for him with incredible love and patience.

The collection helps us provide the necessary care, equipment, and quality of life that Dad deserves. Every contribution brings hope and support. ❤️

This collection is dedicated to our dad, who has been a tireless and hardworking crane operator his entire life. He cared for our family, our home, and everything around it with love and dedication. Nothing was ever too difficult for him if it meant helping us, and he always gave everything he could to keep our family together.

He used to be a top-level cyclist, racing and competing, and movement and sports were his passion. Later, he continued cycling just for fun, but an active lifestyle remained important to him. His energy and determination have always been an inspiration to everyone around him.

Today, our dad is battling ALS, a progressive disease with no cure that gradually weakens all his muscles. He has severe mobility difficulties – he can manage only a few steps with a walker and otherwise relies on a wheelchair. He cannot speak and is unable to perform basic self-care. He produces a lot of saliva and sometimes has trouble swallowing. For nutrition and fluids, he uses a PEG (percutaneous endoscopic gastrostomy) – a tube directly into his stomach through which he receives everything he needs to survive. His thinking remains intact, but due to his diagnosis, he receives psychiatric treatment. Each day is extremely demanding for both him and our mom, and his condition will continue to worsen, requiring even more care.

Our parents have been together for 37 years and form a team that holds the family together. Mom is now his greatest support – the only one who cares for him, provides for the family, and gives 1000% of her attention and care. Every day she ensures he has everything he needs – hygiene, nutrition through PEG, positioning, and all daily care – with incredible patience and love. In addition to standard care, she provides him with alternative treatments not covered by public insurance, such as acupuncture, traditional Chinese medicine, and the Feldenkrais method, which stimulate his nervous system and support both his body and mind.

We, Tereza and Karolína, their daughters, live far away, but our hearts and minds are always with them. We want to help our dad and mom manage this extremely difficult stage of life and provide the care and support he needs in this challenging situation.

The funds raised through this collection will support our dad and mom in their daily lives, which are now very demanding. Mom cares for Dad with immense love and dedication, and the collection will provide her with the necessary support and assistance to make caring for Dad sustainable and to ensure his daily life is as comfortable and safe as possible.

The funds will also be used for equipment and aids that simplify Dad’s care and improve his quality of life. This includes an adjustable bed, an electric wheelchair, an eye-tracking communication device, a wheelchair bag, and other tools that make his daily life easier and provide him with greater comfort and safety.

Part of the funds will also help with mortgage payments, ensuring the family can maintain a stable and safe home, which is extremely important for both of them. Every contribution helps make Dad’s life as comfortable as possible and gives Mom the support she needs to continue providing care.