Šárka má onemocnění míchy zvané Tethered (spinal) cord syndrome (TCS, syndrom „fixované“ míchy), které se jí začalo projevovat až po 30. roku života při těhotenství s druhou dcerou. Postupně dochází k ochrnutí od pasu dolů.
Podstoupené operace míchy nepomohly zastavit zhoršující se stav.
Naštěstí nemá jen holky, ale má i skvělého přítele, který se snaží jakékoli zhoršení stavu zvládnout co nejlépe a vždy Šárce vymyslí, jak může zůstat aktivní co nejvíce, aby mohli vše podnikat spolu. Přítelova rodina dělá myslivost a víkendy tráví na přilehlých loukách a v lese u mlýna. Holky to tam milují.
Letošní jaro pro ně všechny nebylo jednoduché, protože došlo k dalšímu zhoršení. Donedávna Šárka ještě jezdila na elektrokole a chodila o berlích, to vše nyní musela vyměnit za invalidní vozíček, ten ale takový terén nezvládne. Nad tím jak Šárce pomoct, přemýšlím neustále a nyní mám možnost jak ji aspoň trochu udělat radost.
Teď ji budu citovat. Já jsem už jaksi „bokem“, ale nemusela bych být. Přála bych si „chodit“ s nimi.
Ráda bych, aby jsme ji společnými silami k tomuto pomohli.
To whom will we help?
Šárka has a disease of the spinal cord called Tethered (spinal) cord syndrome (TCS), which began to develop just after her age of 30 during pregnancy with her second daughter. Gradually, paralysis occurs from the waist down.
Spinal cord surgery did not help to stop the deteriorating condition.
Fortunately, she has not only daughters, but also has a great boyfriend who tries to manage any deterioration as best as he can and always thinks about Šárka how she could stay as active as possible so that they can do everything together. A friend's family enjoys hunting and spends weekends in the adjacent meadows and in the woods by the watermill. Girls love it there.
This spring was not easy for all of them, because there was a further deterioration. Until recently, Šárka was still riding an e-bike and walking on crutches, now she had to exchange it all for a wheelchair, but she can't handle all terrains. I am constantly thinking about how to help Šárka and now I have the opportunity to make her happy at least a little.
I will quote her now.‚I'm kind of „sideways“ recently, but I wouldn't have to be. I wish I could „go“ with them.‘
I'd like us to help her with this together.
What exactly will the money from this collection be used for?
The money from the collection will be used to purchase a Zoom 4 × 4 wheelchair. It has no problem managing any terrain and would be a solution for her.
Zoom 4 × 4 also fits for winter, she could „go“ to the snow with her daughters.
However, its price is CZK 342,767 (approx. 14K EUR), Šárka is short and has a surcharge for children's handbrakes.
The idea of Zoomability, which manufactures this carriage, is beautiful – „A FREE MIND IN MOTIO“.
Šárka now leads a completely different UNCERTAIN LIFE full of worries and health problems, and I would like her to be as close as possible to an ordinary life that is happy and has as few obstacles and difficulties as possible in it.
Thank you, Magda
