Terapie – Elektroakupunktura
Tatínek pro ni sháněl odborníky po celé republice, kteří se bohužel shodli, že tento typ atrofie zrakových nervů, který má, zatím nelze léčit. Hledal i v zahraničí a našel stopu v Izraeli, kde tamní vědci provádějí pokusy v laboratořích a kde je určitá naděje. Napjatá situace v regionu to však zatím nedovoluje.
Maminku stále vozí i několikrát týdně do nemocnice v Hradci Králové na kontrolní vyšetření. Se souhlasem očních lékařů klasické medicíny ji vozí do Zlína do ordinace integrované medicíny Oriem na alternativní léčbu – tzv. elektroakupunkturu.
Tuto terapii bohužel nehradí zdravotní pojišťovna. S tím souvisí třídenní ubytování, platba za ošetření, pohonné hmoty, strava a další náklady. V okolí bydliště tato alternativní léčba není dostupná. Tatínek si musí brát dovolenou nebo neplacené volno, aby ji doprovodil. Výdaje za tyto tři dny v měsíci činí 12 500 Kč.
Ideálně by byla potřeba intenzivnější terapie – celý týden, dvakrát do měsíce. V tomto případě by náklady vyšly na 48 300 Kč.
Dále maminka potřebuje lékařem doporučené potravinové doplňky (vitamíny, minerály, bylinné směsi) a některé léky, které zdravotní pojišťovna nehradí nebo je hradí jen částečně. Měsíční náklady na tyto doplňky a léky jsou 3 100 Kč.
Zatím maminka pociťuje alespoň nepatrné zlepšení, ale díky těmto pobytům došly rodinné úspory a musela terapii přerušit.
Vybrané peníze budou použity na terapii elektroakupunkturou a veškeré s tím spojené výdaje (doprava, ubytování, strava), dále na lékařem doporučené potravinové doplňky a na pojišťovnou nehrazené nebo jen částečně hrazené léky.
Za všechny vybrané prostředky Vám všem, z celého srdce, děkuji.
Tomáš, syn
ENGLISH
Introduction
My name is Tomáš and my mum, Pavla Hradecká, was a dentist. Several years ago she went through deep vein thrombosis, followed by complete loss of vision on one eye, and she could barely see with the second eye. Diagnosis – type of Optic nerve atrophy, which yet has no cure. To not keep the list short, doctors also discovered that she has bone marrow disease.
She is a great fighter. She always tried, and still is trying, not to show anything. She is the center point of our family who connects us all. Without her, we would not have become who we are now.
After many medical checkups, examinations and tests, there was no change whatsoever. Mum still kept losing the last fragments of vision that she had. But we were still fighting, because you only really lose, when you lose hope.
But one day something happened. Electroacupuncture. This wasn’t an option we were aware of before, but since then, the word has been one thing – hope.
Please help her continue to receive this Electroacupuncture therapy, which has been the only sign of her condition improving, even if it’s only slight, but has been improvement nonetheless.
Who are you helping?
My mum, Pavla Hradecká, was an extraordinary dentist. She has been working at her surgery office since 1994 in Nová Paka. During 2020 she started to experience huge headaches. In autumn of 2021, we discovered a serious issue: Optic nerve atrophy. This discovery led to doctors moving forward with neurosurgery, after which, mum completely lost vision in one eye, with the second eye only being barely functional. She was not able to recognize colors and orient herslef in space. Doctors also discovered that she has bone marrow disease and yet another treatment has begun. Because of these diagnoses, she was forced to quit her job as a dentist. Her life and the life of our whole family was turned upside down. This all brought a lot of changes to her personal life, including her now lack of independence, no longer being able to enjoy her hobbies, the inability to drive her own car, and now a disability pension.
My mum is a big lover of nature, which always gives her energy. She loves walking in the forest and looking at flowers… Oh guys, if only you could see home, it is almost like a jungle. Whenever we had a longer car trip, like we would when we went to visit our grandparents, we brought something back almost every single time. Here a marguerite, there a rowanberries…
Sports, or basically any outdoor activities, were also very important to her. It was her way of relaxing and having fun. Cycling, skiing, running, swimming, ball games, badminton, skating, yoga, hiking. She also used to play competitive volleyball.
In addition to that, she also used to play piano. It was her and my father's passion for piano and skiing that has left me an avid enjoyer of both hobbies myself. Even though I wasn’t as fond of playing piano and skiing when I was younger, I would consider them important aspects of who I am nowadays. Without her, her energy, and love, I wouldn’t be who I am now.
Her disability completely restricts her from doing anything she loves anymore, and she can hardly enjoy time with her grandchildren.
We try to be, as a family, supportive, because we know that she always was there for us as well. Even in this state, she is, but it's financially unbearable.
She’s had many patients satisfied with her work as a dentist, as seen below.
http://www.znamylekar.cz/pavla-hradecka/zubar/nova-paka
How will your donations help
Electroacupuncture therapy
My dad was looking for help from many experts across the Czech Republic, but unfortunately their conclusion was that this type of Optic nerve atrophy cannot be treated as of now. He was also looking for experts abroad and found a trace of hope from doctors in Israel, where the scientists perform experimental treatments, meaning there could be some hope. However, the tense political situation there does not yet allow this. My dad drives her to the hospital in Hradec Králové for check ups, but with permission from the ophthalmologists, he is also taking her to the integrated medical office Oriem located in Zlín for alternative treatment of Electroacupuncture therapy.
This treatment is unfortunately not covered by insurance. Together with therapy expenses, there is also a 3-day accommodation, fuel, diet, and other expenses that are piled on. There is no treatment of this kind anywhere else nearby. My dad has to take a vacation and an unpaid leave from work to accompany her. The cost of this 3-day therapy is 12,500CZK (± 515€) a month.
But everything needs to be more frequent, ideally a whole week, twice a month. In that case, the expenses would be closer to 48,300CZK (±1995€).
She also needs dietary supplements recommended by a doctor (vitamins, minerals, herbal mixtures, etc), and medications. Dietary supplements and some of the recommended medications are also not covered by insurance. Monthly expenses for these dietary supplements and medicaments are 3,100CZK (±130€).
For now, my mum feels at least some small signs of improvement from this treatment. But because of these expenses, our family savings have gone dry and she has been forced to stop attending this therapy.
Any funds raised will go directly to getting her back to therapy and hopefully back on her feet.
If you're able to help at all, I truly thank you from the bottom of my heart.
Sincerely, Tomáš (her son)
